This is the most common inherited form of aplastic anemia. Fanconi anemia is different from Fanconi syndrome, a rare kidney disorder.
Fanconi Hope are a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in Fanconi Anaemia.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Fanconi Hope's work is made possible through the generous donations and funds raised by their supporters, FA families, their friends and relatives across the United Kingdom.
Fanconi Hope are there to support a United Kingdom Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
They promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
FA want to encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
Please visit: FanconiHope.org
TELEPHONE: 0300 330 14 10
The Aplastic Anemia Trust's vision is a world free from aplastic anaemia and allied rare bone marrow failures.
The Aplastic Anemia Trust's mission is to enable vital research into the causes of aplastic anaemia and other rare bone marrow failures that ultimately leads to finding a cure, and to support everyone affected by them, so they can lead healthy and fulfilling lives.
The Aplastic Anemia Trust are the only charity in the United Kingdom dedicated to research into aplastic anaemia and allied rare bone marrow failures, and supporting everyone affected nationally.
The Aplastic Anemia Trust have built productive working partnerships with major research centres of excellence in Great Britain, including St George's Hospital and King's College Hospitals, providing The Aplastic Anemia Trust with direct access to world-class experts, state-of-the-art labs and excellent patient care.
Please visit: TheAAT.org.uk
HELPLINE: 0300 102 32 02